Other UC Web Sites
There are many reliable resources on the Internet for people with ulcerative colitis (UC) and their loved ones.
Online community support groups and forums can also be a source of emotional strength and information to help you manage your condition. These “virtual” meeting places let you reach out to other people who are dealing with this chronic disease without having to leave your home, and they are up and running whenever you have the time.
The Crohn’s & Colitis Foundation of America
The Crohn’s & Colitis Foundation of America (CCFA) provides disease and treatment information about inflammatory bowel diseases, including UC. Look here for listings of local events and suggestions on how to connect with others who share your interest in UC. CCFA can also help you locate physicians, nurses, and other health care professionals who are foundation members.
Web site: ccfa.org
National Digestive Diseases Information Clearinghouse
The National Digestive Diseases Information Clearinghouse (NDDIC) is part of the National Institutes of Health of the US Department of Health and Human Services. It contains a comprehensive overview of UC and links to clinical trial Web sites. The NDDIC works closely with professional and patient organizations and government agencies to coordinate resources about digestive diseases.
Web site: digestive.niddk.nih.gov
The Foundation for Clinical Research in Inflammatory Bowel Disease
The Foundation for Clinical Research in Inflammatory Bowel Disease supports patient and physician education and clinical research into IBD. You’ll also find an “Ask a Specialist” section on the Web site.
Web site: myIBD.org
The American Gastroenterological Association
The American Gastroenterological Association (AGA)
provides information for physicians and people with UC. The “Patient Center” links to webcasts, downloadable brochures, and physician-run UC blogs.
Web site: Gastro.org
The IBD Support Foundation
The IBD Support Foundation is based in Los Angeles, California. Its Web site provides nutritional advice and access to counseling services for individuals and families coping with UC.
Web site: IBDsupportfoundation.com
Online community support forums
At these Web sites, you may find UC health articles, recent medical news about UC, and other educational resources. You may also be able to participate in chat rooms, bulletin boards, or message boards, where people affected by UC and related conditions can share their feelings and life experiences. Before you choose to join an online community, it’s important to know what you want to get out of the experience and what you’re willing to invest in return.
CCFAcommunity.org
DailyStrength.org
HealingWell.com
HealthBoards.com
IBDCrohns.about.com
Disclaimer
Some of the Web sites listed here allow for free exchange of information (for example, chat rooms and forums). Shire does not sponsor or endorse this free exchange of information, and Shire is not responsible for the content or services provided by any of these Web sites. The Web sites are not owned by Shire and are governed by their own policies and guidelines, including privacy policies.
