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Helpful Ulcerative Colitis (UC) Resources

Following Your Treatment Plan

The following resources may help you work with your doctor and take an active role in your UC treatment plan.

It’s important to learn as much as you can about UC so you can make informed decisions and have productive conversations with your doctor. There are many helpful organizations and resources out there for you. As you continue to take an active role in your treatment plan, visit the Web sites below and do a keyword search for "ulcerative colitis" on each to discover information you may find helpful.

The Crohn's & Colitis Foundation of America

The Crohn's & Colitis Foundation of America (CCFA) provides disease and treatment information about UC. Look here for listings of local events and suggestions on how to connect with others who share your interest in UC. CCFA can also help you locate physicians, nurses, and other health care professionals who are foundation members. Web site: ccfa.org Keyword search: ulcerative colitis

American College of Gastroenterology

The American College of Gastroenterology (ACG) provides information for physicians and patients with UC. Click on the tab labeled “Patients” to get educational information and resources about UC. You can also locate an ACG member gastroenterologist in your area and stay up to date on the latest news. Web site: gi.org Keyword search: ulcerative colitis

National Digestive Diseases Information Clearinghouse

The National Digestive Diseases Information Clearinghouse (NDDIC) is part of the National Institutes of Health of the US Department of Health and Human Services. It contains a comprehensive overview of UC and links to clinical trial Web sites. The NDDIC works closely with professional and patient organizations and government agencies to coordinate resources about digestive diseases. Web site: digestive.niddk.nih.gov Keyword search: ulcerative colitis

The American Gastroenterological Association

The American Gastroenterological Association (AGA) provides information for physicians and people with UC. The “PatientINFO Center” has links to detailed guides about ulcerative colitis and how nutrition may help, as well as information about certain procedures. Web site: gastro.org

Online Community Support Forums

At these Web sites, you may find UC health articles, recent medical news about UC, and other educational resources. You may also be able to participate in chat rooms, bulletin boards, or message boards where people affected by UC can share their experiences. Before you choose to join an online community, it's important to know what you want to get out of the experience and what you're willing to invest in return.

CCFAcommunity.org DailyStrength.org HealingWell.com HealthBoards.com WebMD.com

Keyword search ulcerative colitis in the forums above.

Disclaimer

Some of the Web sites listed here allow for free exchange of information (for example, chat rooms and forums). Shire does not sponsor or endorse this free exchange of information. Shire is not responsible for the content or services provided by any Web sites that are not owned by Shire. Web sites that are not owned by Shire are governed by their own policies and guidelines, including privacy policies.

 

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